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Dr Neville Clare MA., PhD. Philosophical author of 'An OSCAR for My Troubles' This book is radically different from anything that has appeared on Sickle Cell before. It is an authoritative, personal, passionate and brave account of the real significance of this disorder in Britain today and why it deserves a far better deal than to be seen as a "minority" issue. About twelve thousand people have full-blown Sickle Cell Disorder in UK. It is often devastating in its pain and its impact on patient's lives. Possibly ten times more have the "trait" or "carrier status". However, this book has far wider significance. Sickle Cell Disorder tells a story that goes way beyond the medical. It goes to the heart of Black History and Politics. This book deals with concepts of Race, of Disease, of Genetics and of patients' Rights. It tells the often woeful history of public neglect of the disorder, then of treatments imposed which are later withdrawn from patients. It also tells of a life, from Jamaican childhood to adult; the struggles, the battle with chronic pain and the battle with ignorance and prejudice. Neville Clare founded the first Sickle Cell Charity and self-help group in Uk. He spent three decades campaigning for better awareness and treatment of Sickle Cell Disorder. He explains the real significance of the disorder today. Testimonial For further information or to make an order contact Neville Clare: 0208 888 2148 or 07877 572 105.
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